What is Public Involvement?

Public involvement (PPI), previously known as patient and public involvement, is defined by INVOLVE as:

Research being carried out 'with' or 'by' members of the public rather than 'to', 'about' or 'for' them.

This means that research is opened up to the people whom it directly impacts: the patients themselves, carers, potential patients and those who represent people who use various medical services. By working with these groups, we as researchers can make sure that research is relevant and useful to those who need it. Some of the ways in which PPI make a contribution to our research include:

  • Providing advice as members of a project management group

  • Advising on and developing research materials such as : patient information booklets, patient information sheets, consent forms, training videos and much more

  • Developing the grant application for the project

  • Helping us to appropriately distribute the information we gain from the programme to the general public through publications, press release, conferences and events

STAMINA is a five year research project funded by the National Institute for Health Research (NIHR) in the UK. The programme is designed to evaluate the effectiveness of a long term supported exercise intervention in men with advanced prostate cancer who have undergone medical castration with androgen deprivation therapy (ADT).

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